Help raise HAE awareness and have fun at the same time!
Between now and the end of May, we are encouraging everyone to join the 2024 HAEi Activity Challenge. After each time you participate in a wellness activity (physical or otherwise) you simply add it to your profile and watch Canada’s steps grow!
Latest News
Winnipeg: the latest Canadian city to Light Up For Rare
Throughout the year, the Rare Disease Day organization is "raising awareness and generating change for
Honouring Rare Disease Day 2024
To honour Rare Disease Day 2024, HAE Canada Board members, Kerstyn Lane and Carmen Craciun,
Imagine Canada Accreditation
A few years ago, HAE Canada’s Past President, Jacquie Badiou, realized that HAEC would benefit
2023 – 2024 Board of Directors
Thank you to our members who cast their vote during the 2023 Annual General Meeting
I am Number 12 Campaign
HAE Canada, along with 12 other rare disease patient organizations, and Takeda Canada, unite to
ORLADEYO (oral treatment) is recommended for reimbursement in Quebec
Institut national d'excellence en santé et services sociaux (INESSS), whose missions is "to promote clinical
TAKHZYRO available through Veterans Affairs Canada
Qualifying HAE patients who access treatments through Veterans Affairs Canada (VAC) now have access to
TAKHZYRO available in PEI
Great news for eligible HAE patients in PEI. Lanadelumab (TAKHZYRO), a subcutaneous injection to routinely
Improved access to affordable and effective drugs for rare diseases in Canada
On March 22, 2023, the Canadian federal government announced their plan to provide up to
CADTH Recommends Reimbursement for ORLADEYO
We are thrilled to share that the Canadian Agency for Drugs and Technologies in Heath
Support Family Testing
Give valuable insights in HAE science
Hereditary Angioedema (HAE) is a hereditary disorder. It is therefore very important to have other family members tested. To help you in this process HAE International has developed two documents for patients. You can download the documents below:
