Latest News
HAEC has a new Mission and Vision
The HAE Canada Board of Directors and staff are currently working with Heather Dow (Events and Management Plus) to develop our next Five Year Strategic Plan. We have
Winnipeg: the latest Canadian city to Light Up For Rare
Throughout the year, the Rare Disease Day organization is "raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and
Honouring Rare Disease Day 2024
To honour Rare Disease Day 2024, HAE Canada Board members, Kerstyn Lane and Carmen Craciun, along with staff member, Daphne Dumbrille, attended the Canadian Organization for Rare Disorders (CORD)
Imagine Canada Accreditation
A few years ago, HAE Canada’s Past President, Jacquie Badiou, realized that HAEC would benefit from gaining accreditation from Imagine Canada, a national organization that helps not-for-profit organizations
2023 – 2024 Board of Directors
Thank you to our members who cast their vote during the 2023 Annual General Meeting on November 14th, either in person or via proxy; your presence allowed us
I am Number 12 Campaign
HAE Canada, along with 12 other rare disease patient organizations, and Takeda Canada, unite to launch the I Am Number 12 campaign. This campaign elevates the voices of
ORLADEYO (oral treatment) is recommended for reimbursement in Quebec
Institut national d'excellence en santé et services sociaux (INESSS), whose missions is "to promote clinical excellence and the efficient use of resources in the health and social services
TAKHZYRO available through Veterans Affairs Canada
Qualifying HAE patients who access treatments through Veterans Affairs Canada (VAC) now have access to Takhzyro. Please speak to your treating HAE specialist about how you can access
TAKHZYRO available in PEI
Great news for eligible HAE patients in PEI. Lanadelumab (TAKHZYRO), a subcutaneous injection to routinely prevent attacks in patients with HAE Type I or II (12 years old
Improved access to affordable and effective drugs for rare diseases in Canada
On March 22, 2023, the Canadian federal government announced their plan to provide up to $1.5 billion over three years to implement the Rare Disease Drug Strategy, as